In the midst of everything she learned how to steer a straw while in the hospital. Give me another juice. – Katie
Archive for February, 2012
Drinking Juice
Posted in Uncategorized on February 28, 2012 | 3 Comments »
I see my life
Posted in Uncategorized on February 28, 2012 | 1 Comment »
Over the weekend a lot of Lucy’s family came to visit. It was good and bittersweet. We hold on to her and each other all day long. I have to let the other kids go so they can go to school. It doesn’t seem like a waste of time to sit with Lucy and Helen [...]
Sisters of mercy
Posted in Uncategorized on February 28, 2012 |
We have been taking a lot of pictures lately. I’ve also been listening over and over to my Leonard Cohen CDs. Remember his song Sisters of Mercy ? – Katie Oh the sisters of mercy, they are not departed or gone. They were waiting for me when I thought that I just can’t go on. [...]
Nooshling
Posted in Uncategorized on February 26, 2012 | 4 Comments »
There is a word we use to describe the baby girls while they do their baby-work; Helen toddling about and Lucy sitting and playing with toys. It is a made up word: nooshling, pronounced as if it has three syllables. Helen came to the hospital two mornings last week and there was serious hospital nooshling. [...]
Baby
Posted in Uncategorized on February 25, 2012 | 7 Comments »
We are doing a lot of processing. There are no words yet. One thing we have been doing is taking a lot of pictures. Lucy’s Granna brought her a special new baby. The baby is soft with rosy pink clothes, and she loved it. – Katie
Care Conference
Posted in Uncategorized on February 23, 2012 | 33 Comments »
Katie and I have just come from a care conference with Lucy’s Cardiologist, her Palliative Care doctor as well as other team members involved in her care. It was a difficult meeting, but a helpful one. There is no treatment being given in the hospital that is not also available at home. We have decided [...]
Rock and a Hard Place
Posted in Uncategorized on February 23, 2012 | 6 Comments »
Lucy is between a rock and a hard place. Her lungs and heart chamber are filled with fluid, so much that chest X-rays show her lungs as nearly a solid mass of white. You can take medicine that drains fluid out of the body, but those medications are tough on your kidneys. (“Like body blows” [...]
Ash Wednesday
Posted in Uncategorized on February 22, 2012 | 4 Comments »
We’re facing some hard realities right now. James went to attend a short Ash Wednesday service at the hospital chapel. The chaplain there said today is a day to celebrate our mortality. That the cost of enjoying life for ourselves and others is that it must end. When James and I are experiencing great stress [...]
To the hospital
Posted in Uncategorized on February 20, 2012 | 17 Comments »
James has taken Lucy to Children’s this evening. She has been having trouble breathing since the beginning of January, but the severity of her trouble comes and goes. Today our hospice nurse came for a checkup (the adored “bug bracelet” lady – someday we are going to have to get one of those bracelets), and [...]
Flopping, Part 2
Posted in Uncategorized on February 17, 2012 |
Helen and Skippy prefer to flop into boxes. Nestling your wee self down into a small, tight little space – it makes you feel safe AND clever at the same time! They rifle through the tupperware drawer, recycling bin, and toy trunks to find cat-and-baby-size-receptacles. The suitable ones are invariably dragged into the kitchen. Kitchens [...]
